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Spinal muscular atrophy - causes, symptoms, diagnosis, treatment, pathology


What is spinal muscular atrophy (SMA)? SMA's an autosomal recessive disorder that causes alpha motor neurons in the spinal cord to die, resulting in muscle weakness and atrophy. Subscribe -...
 

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Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)


Noelle is a high school student who is diagnosed with spinal muscular atrophy. Mikey, her older brother, has the same diagnosis.As Noelle faces the difficulties involved with having a disability...
 

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Growing Up With Spinal Muscular Atrophy


Noël Ratapu was born with a condition that means she is gradually losing muscle strength and mobility. Now 15, Noël has found her voice and identity in the lens of the camera as she accepts...
 

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Growing up with Spinal Muscular Atrophy


Maija Fredrichberg has Spinal Muscular Atrophy. Her muscles are slowly deteriorating and her parents were told she wouldn't live past her fifth birthday. Maija is now ten years old and thriving,...
 

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Roche in Spinal Muscular Atrophy: making a difference for families


Spinal Muscular Atrophy (SMA) is is a devastating disorder that affects 1 in 10000 newborns. It is the leading genetic cause of death in infants and toddlers. In its most severe forms, it...
 

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Spinal Muscular Atrophy SMA


Brief talk about Spinal Muscular Atrophy.
 

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The Beauty Blogger With Spinal Muscular Atrophy Inspiring Others With Her Tips | Living Differently


Tess Daly is completely paralysed but she has gained tens of thousands of followers online because of the amazing make up she can apply with the limited movement in her hand. -- Click here...
 

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Families of Spinal Muscular Atrophy Canada


A short look at the lives of families affected by SMA - kids participating in outdoor fun - and expressing hope for their futures. An HD version is also available for use at your fundraising...
 

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Spinale Muskelatrophie Typ 1 | Stammzell-Therapie Testimonial


Agnieszka Filipkowska fühlte, dass Stammzell-Therapie ihre letzte Chance im Leben war. Mit wurde mit SMA geboren, ihre Muskelkraft verschlechterte sich also stetig, und jedes Jahr fühlte...
 

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A first-ever therapy for spinal muscular atrophy


Nervous and kind of excited,” 14-year-old Malorie Fox prepares to receive a new treatment.
 

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My Child Has Spinal Muscular Atrophy What Will Their Life Be Like


My Child Has Spinal Muscular Atrophy What Will Their Life Be Like. Bringing up a kid with a physical handicap can be testing. Spinal solid decay (SMA) can influence all parts of everyday...
 

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Families cope with SMA, the leading genetic cause of infant death


Spinal muscular atrophy type 1 is the leading genetic cause of death for infants. 1 in 10000 babies are born with the gene mutation that causes the disorder. With the cause now identified...
 

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A Life with SMA Documentary - Eric Murphy


A student-made documentary about a disease I am diagnosed with called Spinal Muscular Atrophy.
 

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Faith’s Spinal Muscular Atrophy Story


Meet Faith. She was born with spinal muscular atrophy, and faces a daily struggle to do every day things that most of us take for granted. Watch to see how a new treatment changed her life....
 

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A Personal Story of the Diagnosis of Spinal Muscular Atrophy


James talks of having a child with very severe Type I SMA Originally created for Learn About Spinal Muscular Atrophy ( http://www.learnaboutsma.org/ ) TRANSCRIPT: The pregnancy was pretty...
 

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Introduction to Spinal Muscular Atrophy


Dr. Darryl De Vivo provides an overview of SMA, including the cause and symptoms associated with SMA types I, II, III and IV Originally created for Learn About Spinal Muscular Atrophy (...
 

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Spinal Muscular Atrophy Treatment at Nationwide Children's -- Brett & Paige


Help us help kids like Brett. Please give by visiting http://www.nationwidechildrens.org/giving?utm_source=youtube.com&utm_medium=referral&utm_content=Video+Description+-+A+Sister’s...
 

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Tell Me a Story: Wonders of Technology Help Siblings with Spinal Muscular Atrophy


http://www.cincinnatichildrens.org/service/a/aaron-perlman-center/default/ Like most kids their age, siblings Emma and Nick Lockwood, ages 10 and 8, have taken to technology. They love computer...
 

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Improving Outcomes in Spinal Muscular Atrophy


Spinal muscular atrophy is a progressive motor neuron disease with an onset during infancy that results in failure to meet motor milestones and in death or the need for mechanical ventilation...
 

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Cash's story | Pioneering care for spinal muscular atrophy


Cash Goeppert—a 7 year old afflicted with spinal muscular atrophy—is regaining limited motor function thanks to pioneer medication (Spinraza) treatment at Sutter Children's Center Sacramento.
 

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Genes Involved With Spinal Muscular Atrophy


Dr. Charlotte Sumner explains how SMA is related to changes in the SMN1 and SMN2 genes Originally created for Learn About Spinal Muscular Atrophy ( http://www.learnaboutsma.org/ ) TRANSCRIPT:...
 

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Parents want Texas to add spinal muscular atrophy to newborn screenings


A new kind of screening for newborns is up for discussion in the state.
 

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A Personal Story of Adult Life With Spinal Muscular Atrophy


Steve talks about life with mild SMA, from high school, to college, to his law career Originally created for Learn About Spinal Muscular Atrophy ( http://www.learnaboutsma.org/ ) TRANSCRIPT:...
 

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Finding a cure for spinal muscular atrophy (SMA)


Stephen Clark is on a mission to help his granddaughter Scarlet, who suffers from a rare, genetic condition call spinal muscular atrophy, or SMA. ◂ WXYZ 7 Action News is metro Detroit's...
 

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A Personal Story of Children's Understanding of Spinal Muscular Atrophy


Ron and Debbie describe what 8 year old Dylan and his 5 year old sister know about his SMA Originally created for Learn About Spinal Muscular Atrophy ( http://www.learnaboutsma.org/ ) ...
 

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The Cause of Spinal Muscular Atrophy


Dr. De Vivo explains the cause of SMA, including genetics and physiology.
 

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In loving memory of Tiana Keeley Jones, Spinal muscular atrophy (SMA)


Dedicated to are beautiful Tiana. Who was born on the 8th of july 2011 weighing 4lb.6oz Sadly passed spinal muscular atrophy on the 18th october 2011.
 

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Danyelle’s Story – Raising Two Children with Spinal Muscular Atrophy (SMA)


Spinal muscular atrophy (SMA) is a rare, genetic neuromuscular disease affecting the part of the nervous system that controls muscle movement. When her oldest child first started showing symptoms...
 

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Spinal muscular atrophy drug brings hope but at steep price


A new drug is giving new hope for children with spinal muscular atrophy, but there's a challenge to attain it. Avis Favaro explains. Subscribe to CTV News to watch more videos: https://www.youtub...
 

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Spinal muscular atrophy (SMA)


This video featuring people affected by spinal muscular atrophy and specialist neuromuscular health professionals is an introduction to the main facets of CMT and the support that is available...
 

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NEW HOPE FOR SPINAL MUSCULAR ATROPHY


SMA robs a person of physical strength; taking away the ability to walk, eat and even breathe. Without support methods, about three quarters of babies with type one SMA die before the age of...
 

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Shannon \


via YouTube Capture.
 

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Spinal Muscular Atrophy Type 1 - Dr. Bob Leshner


Pediatric neurologist, neuromuscular clinician, clinical trials researcher, and member of FightSMA's Scientific Advisory Committee, Dr. Bob Leshner discusses SMA type 1, the most severe form...
 

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SMARD(Spinal Muscular Atrophy Respiratory Distress) Eli's Story.


Spinal Muscular Atrophy with Respiratory Distress is a \
 




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