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Spinal muscular atrophy - causes, symptoms, diagnosis, treatment, pathology


What is spinal muscular atrophy (SMA)? SMA's an autosomal recessive disorder that causes alpha motor neurons in the spinal cord to die, resulting in muscle ...
 

Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)


Noelle is a high school student who is diagnosed with spinal muscular atrophy. Mikey, her older brother, has the same diagnosis.As Noelle faces the difficulties ...
 

Growing Up With Spinal Muscular Atrophy


Noël Ratapu was born with a condition that means she is gradually losing muscle strength and mobility. Now 15, Noël has found her voice and identity in the ...
 

The Beauty Blogger With Spinal Muscular Atrophy Inspiring Others With Her Tips | Living Differently


Tess Daly is completely paralysed but she has gained tens of thousands of followers online because of the amazing make up she can apply with the limited ...
 

Spinal Muscular Atrophy SMA


Brief talk about Spinal Muscular Atrophy.
 

Families of Spinal Muscular Atrophy Canada


A short look at the lives of families affected by SMA - kids participating in outdoor fun - and expressing hope for their futures. An HD version is also available for ...
 

Dare to Be Remarkable: Living w. Spinal Muscular Atrophy


When Alyssa was 5 months old, she was diagnosed with a genetic disease called Spinal Muscular Atrophy (SMA). At the time of the diagnosis, the doctors told ...
 

A Life with SMA


A film made for SMA Awareness month 2014, in collaboration with SMA Support UK.
 

A first-ever therapy for spinal muscular atrophy


Nervous and kind of excited,” 14-year-old Malorie Fox prepares to receive a new treatment.
 

Nusinersen (SpinrazaTM): The First FDA Approved Treatment for SMA


Prof. Adrian R. Krainer, PhD Cold Spring Harbor Laboratory 2017 Canada Gairdner Research Symposium October 27, 2017.
 

Families cope with SMA, the leading genetic cause of infant death


Spinal muscular atrophy type 1 is the leading genetic cause of death for infants. 1 in 10000 babies are born with the gene mutation that causes the disorder.
 

Faith’s Spinal Muscular Atrophy Story


Meet Faith. She was born with spinal muscular atrophy, and faces a daily struggle to do every day things that most of us take for granted. Watch to see how a ...
 

A Life with SMA Documentary - Eric Murphy


A student-made documentary about a disease I am diagnosed with called Spinal Muscular Atrophy.
 

Therapeutic Exercise for SMA


Utilizing therapeutic exercise to improve flexibility, function, independence and quality of life for clients with spinal muscular atrophy.
 

Spinal Muscular Atrophy Q&A


What is spinal muscular atrophy (SMA)? What are the primary symptoms? Is there a cure? Learn the answers to these questions and more on this episode of ...
 

Finding a cure for spinal muscular atrophy (SMA)


Stephen Clark is on a mission to help his granddaughter Scarlet, who suffers from a rare, genetic condition call spinal muscular atrophy, or SMA. ◂ WXYZ 7 ...
 

Introduction to Spinal Muscular Atrophy


Dr. Darryl De Vivo provides an overview of SMA, including the cause and symptoms associated with SMA types I, II, III and IV Originally created for Learn About ...
 

Max Strength: Living with SMA (2015/11/30)


Max has spinal muscular atrophy (SMA) type 1, a life-threatening genetic disease affecting motor neurons. http://www.maxstrength.org This video shows what life ...
 

Our journey with Spinal Muscular Atrophy


Grayson has taught us to hug tighter, laugh louder and love harder. We can only hope that his legacy now inspires others to live radiantly and raises funds and ...
 

Roche in Spinal Muscular Atrophy: making a difference for families


Spinal Muscular Atrophy (SMA) is is a devastating disorder that affects 1 in 10000 newborns. It is the leading genetic cause of death in infants and toddlers.
 

Baby Jane, Spinal Muscular Atrophy (SMA), and a Million Dollar Drug


On March 28, 2018, I sat down with Baby Jane and her parents Megan and Bryant of Bemidji, Minnesota, USA. They shared Jane's and their journey--first ...
 

SMA: A Day in the Life


Max has spinal muscular atrophy (SMA) type 1, a life-threatening genetic disease affecting motor neurons. http://www.maxstrength.org We made this video to ...
 

Spinal Muscular Atrophy Treatment at Nationwide Children's -- Brett & Paige


Help us help kids like Brett. Please give by visiting ...
 

U.S. FDA Approves Biogen’s SPINRAZA™ (nusinersen), The First Treatment for Spinal Muscular Atrophy


Video of the Farrell family who live in the U.S. Children Braeden and Kernen both have spinal muscular atrophy (SMA). MORE INFORMATION: ...
 

Strength before spinraza treatment in type 3 adult spinal muscular atrophy


Trever Bacher with type 3 SMA going to start treatment spinraza. Showing his current strength and weakness. HD video.
 

Kristof Battles SMA: Here's His Story


In April, 2017, 17 month old Kristof Czodor, \
 

Spinal Muscular Atrophy


This video was created with the intent to research SMA.-- Created using PowToon -- Free sign up at http://www.powtoon.com/join -- Create animated videos and ...
 

Richard Finkel, AAN 2018 – Spinal muscular atrophy (SMA) is a treatable neurodegenerative disease


Richard Finkel (Nemours Children's Hospital), recipient of this year's Sidney Carter Award in Child Neurology, speaks to us on the topic of his presentation ...
 

Improving Outcomes in Spinal Muscular Atrophy


Spinal muscular atrophy is a progressive motor neuron disease with an onset during infancy that results in failure to meet motor milestones and in death or the ...
 

A Personal Story of Children's Understanding of Spinal Muscular Atrophy


Ron and Debbie describe what 8 year old Dylan and his 5 year old sister know about his SMA Originally created for Learn About Spinal Muscular Atrophy ...
 

Parents want Texas to add spinal muscular atrophy to newborn screenings


A new kind of screening for newborns is up for discussion in the state.
 

Reflections on SMA Support UK


Reflections from those who attended the SMA Support UK Information, Support and Social event in April 2018.
 

Spinal muscular atrophy (SMA)


This video featuring people affected by spinal muscular atrophy and specialist neuromuscular health professionals is an introduction to the main facets of CMT ...
 

Lancet Study on Spinal Muscular Atrophy - Nemours Children's Hospital


Infants as young as five weeks old with the most severe form of spinal muscular atrophy (SMA) – a leading genetic cause of infant mortality – can be treated ...
 

Spinal Muscular Atrophy Patient Testimonial - Stem Cell Treatment


Reversing Spinal Muscular Atrophy in a child - www.stemcellofamerica.com.
 

Spinal Muscular Atrophy Presentation


 




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