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Families of Spinal Muscular Atrophy Canada

Families of Spinal Muscular Atrophy Canada

A short look at the lives of families affected by SMA - kids participating in outdoor fun - and expressing hope for their futures. An HD version is also available for ...

More Spinal Muscular Atrophy videos

Spinal muscular atrophy - causes, symptoms, diagnosis, treatment, pathology

What is spinal muscular atrophy (SMA)? SMA's an autosomal recessive disorder that causes alpha motor neurons in the spinal cord to die, resulting in muscle ...

Growing Up With Spinal Muscular Atrophy

Noël Ratapu was born with a condition that means she is gradually losing muscle strength and mobility. Now 15, Noël has found her voice and identity in the ...

Siblings with Spinal Muscular Atrophy (High School Lunch with a Disability)

Noelle is a high school student who is diagnosed with spinal muscular atrophy. Mikey, her older brother, has the same diagnosis.As Noelle faces the difficulties ...

A first-ever therapy for spinal muscular atrophy

Nervous and kind of excited,” 14-year-old Malorie Fox prepares to receive a new treatment.

The Beauty Blogger With Spinal Muscular Atrophy Inspiring Others With Her Tips | Living Differently

Tess Daly is completely paralysed but she has gained tens of thousands of followers online because of the amazing make up she can apply with the limited ...

A Day in the Life with SMA


Dare to Be Remarkable: Living w. Spinal Muscular Atrophy

When Alyssa was 5 months old, she was diagnosed with a genetic disease called Spinal Muscular Atrophy (SMA). At the time of the diagnosis, the doctors told ...

A Life with SMA

A film made for SMA Awareness month 2014, in collaboration with SMA Support UK.

Nusinersen (SpinrazaTM): The First FDA Approved Treatment for SMA

Prof. Adrian R. Krainer, PhD Cold Spring Harbor Laboratory 2017 Canada Gairdner Research Symposium October 27, 2017.

Growing up with Spinal Muscular atrophy | Ellie dp

Hey everyone I hope you all enjoyed this video! I was so nervous to post this so I really hope it's okay and you all like it. Please leave a comment if you have any ...

Families cope with SMA, the leading genetic cause of infant death

Spinal muscular atrophy type 1 is the leading genetic cause of death for infants. 1 in 10000 babies are born with the gene mutation that causes the disorder.

Finding a cure for spinal muscular atrophy (SMA)

Stephen Clark is on a mission to help his granddaughter Scarlet, who suffers from a rare, genetic condition call spinal muscular atrophy, or SMA. ◂ WXYZ 7 ...

Stella: An SMA Story

Visit Stella's Blog: www.thisisstella.com.

Introduction to Spinal Muscular Atrophy

Dr. Darryl De Vivo provides an overview of SMA, including the cause and symptoms associated with SMA types I, II, III and IV Originally created for Learn About ...

Faith’s Spinal Muscular Atrophy Story

Meet Faith. She was born with spinal muscular atrophy, and faces a daily struggle to do every day things that most of us take for granted. Watch to see how a ...

Spinal Muscular Atrophy Q&A

What is spinal muscular atrophy (SMA)? What are the primary symptoms? Is there a cure? Learn the answers to these questions and more on this episode of ...

A Life with SMA Documentary - Eric Murphy

A student-made documentary about a disease I am diagnosed with called Spinal Muscular Atrophy.

Max Strength: Living with SMA (2015/11/30)

Max has spinal muscular atrophy (SMA) type 1, a life-threatening genetic disease affecting motor neurons. http://www.maxstrength.org This video shows what life ...

Danyelle’s Story – Raising Two Children with Spinal Muscular Atrophy (SMA)

Spinal muscular atrophy (SMA) is a rare, genetic neuromuscular disease affecting the part of the nervous system that controls muscle movement. When her ...

Baby Jane, Spinal Muscular Atrophy (SMA), and a Million Dollar Drug

On March 28, 2018, I sat down with Baby Jane and her parents Megan and Bryant of Bemidji, Minnesota, USA. They shared Jane's and their journey--first ...

Improving Outcomes in Spinal Muscular Atrophy

Spinal muscular atrophy is a progressive motor neuron disease with an onset during infancy that results in failure to meet motor milestones and in death or the ...

Spinal Muscular Atrophy Treatment at Nationwide Children's -- Brett & Paige

Help us help kids like Brett. Please give by visiting ...

Strength before spinraza treatment in type 3 adult spinal muscular atrophy

Trever Bacher with type 3 SMA going to start treatment spinraza. Showing his current strength and weakness. HD video.

SMA drug Spinraza approved by FDA

The FDA on December 23, 2016 approved the drug Spinraza for the treatment of the underlying cause of spinal muscular atrophy (SMA). For more information ...


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It's SMA Awareness Month!

Instagram user - qm710hascourage.

Roche in Spinal Muscular Atrophy: making a difference for families

Spinal Muscular Atrophy (SMA) is is a devastating disorder that affects 1 in 10000 newborns. It is the leading genetic cause of death in infants and toddlers.

Spinal Muscular Atrophy

This video was created with the intent to research SMA.-- Created using PowToon -- Free sign up at http://www.powtoon.com/join -- Create animated videos and ...

Video on Spinal Muscular Atrophy

Video on Spinal Muscular Atrophy.

Spinal Muscular Atrophy Type 1, Amanda, 17 months old

Amanda playing and singing with Teacher Maecy.

Spinal Muscular Atrophy Type 3 and Type 4 - Dr. Bob Leshner

Pediatric neurologist, neuromuscular clinician, clinical trials researcher, and member of FightSMA's Scientific Advisory Committee, Dr. Bob Leshner discusses ...

Spinal Muscular Atrophy - petition for treatment in Malaysia


SMA Type 1, critically illness, life limiting/Trach, yes or no?


stem cell therapy treatment for spinal muscular atrophy by dr alok sharma, mumbai, india

improvement seen in just 3 months after stem cell therapy treatment for spinal muscular atrophy by dr alok sharma, mumbai, india. Stem Cell Therapy done date ...

Spinal Muscular Atrophy - Causes, Symptoms, Diagnosis, Treatment, Pathology [Apa Itu Spinal

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