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SpinalMuscularAtrophy news

Global spinal muscular atrophy treatment market to grow; China, India markets to boom: 5 observations

Becker's Orthopedic & Spine - Oct 18, 2016
The global spinal muscular atrophy treatment market is positioned to grow through 2021, due to a growing number of SMA cases and rising awareness about diagnostic and treatment options, based on a Persistence Market Research report, according to ...

Spotlight Innovation Launches Development of STL-182 to Treat Spinal Muscular Atrophy

PR Newswire (press release) - Oct 19, 2016
Spinal Muscular Atrophy affects between 1 in 6,000 and 1 in 10,000 newborns. Approximately 1 in 40 to 1 in 50 adults have only a single intact spinal motor neuron 1 (SMN1) gene, which encodes a protein (SMN) required for proper neuromuscular function.

Surf Dog Ricochet Brings Joy To Kids With Spinal Muscular Atrophy

DOGOnews - Sep 21, 2016
Three-year-old Bailey suffers from Spinal Muscular Atrophy (SMA), a medical condition that affects the spinal cord's motor nerve cells. As a result, she is unable to sit, stand, crawl, or walk on her own. She also can't swallow food efficiently or ...

Spinal Muscular Atrophy - premium items on eBay

Parks Duffey III Signed 6/100 Andrew's Buddies SMA Spinal Muscular Atrophy 20x28


The Official Parent's Sourcebook on Spinal Muscular Atrophy: A Revised and...


NEW X-Linked Spinal Muscular Atrophy: The Linkage, the Gene & Smn Complex by Yar


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Spinal Muscular Atrophy books

Miracle Boy Grows Up: How the Disability Rights Revolution Saved My Sanity

by: Ben Mattlin
"An insightful, poignant, light-hearted and often hilarious memoir" (Jay McInerney).  Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital muscle weakness from which he was expected to die in childhood. Not only did Mattlin survive, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin's life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel he was disadvantaged at all, merely different.
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Laughing at My Nightmare

by: Shane Burcaw

With acerbic wit and a hilarious voice, Shane Burcaw's Laughing at My Nightmare describes the challenges he faces as a twenty-one-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease.
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The Me in the Mirror

by: Connie Panzarino
Writer, activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita. Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different. Now I had a name for the difference, like being Italian or Jewish. I was an Amytonia. I didn't understand if that meant that I would never walk, or if all it meant was lack of muscle tone. I didn't know that most children with this disease die before they're five years old.
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Spinal Muscular Atrophy - A Bibliography and Dictionary for Physicians, Patients, and Genome Researchers

by: Philip M. Parker
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. Since only the smallest fraction of information dealing with spinal muscular atrophy is indexed in search engines, such as www.
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Spinal Muscular Atrophy videos

Roche in Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is the leading genetic cause of death in infants and toddlers and is associated with a high rate of childhood mortality in its most ...

Spinal Muscular Atrophy

This video was created with the intent to research SMA.-- Created using PowToon -- Free sign up at http://www.powtoon.com/join -- Create animated videos and ...

Finding a cure for spinal muscular atrophy (SMA)

Stephen Clark is on a mission to help his granddaughter Scarlet, who suffers from a rare, genetic condition call spinal muscular atrophy, or SMA. ◂ WXYZ 7 ...

Spinal Muscular Atrophy Treatment at Nationwide Children's -- Brett & Paige

Help us help kids like Brett. Please give by visiting ...

Dare to Be Remarkable: Living w. Spinal Muscular Atrophy

When Alyssa was 5 months old, she was diagnosed with a genetic disease called Spinal Muscular Atrophy (SMA). At the time of the diagnosis, the doctors told ...